Recognized as the leading international meeting dedicated to neuromuscular diseases, the conference convenes renowned researchers, clinicians, affiliated health care providers, academicians, advocates ...
The MDA Berks Black-N-Blue Ball is a high-energy evening where bold style meets a powerful mission. Hosted at Classic Harley-Davidson, this unforgettable event brings together supporters, community ...
The FDA has given the go-ahead for a trial testing an oral therapy that aims to aid muscle regeneration in adults with FSHD, ...
DMD patients who switched to the experimental therapy deramiocel in a trial showed slower declines in upper limb function ...
The realization that they were not alone set the tone for MDA Engage: Chicago, a free symposium held Sept. 26 in suburban ...
New treatments for muscular dystrophy are moving forward, but some promising therapies have fallen short in trials, two ...
A lift door failing to open ahead of a concert illustrates the issues with accessibility that columnist Betty Vertin's sons face regularly.
Navigating Duchenne muscular dystrophy (DMD) is a journey with challenges at every stage. From recognizing early signs to managing daily life, understanding genetics and heart health is key. With the ...
It’s been a big week for the Vertin Party of 9. We moved into our new home, and after only a week, the blessings seem boundless. I’m so thankful to share this because, as you can imagine, moving a ...
Rob Stemple is a lifelong advocate for people with disabilities. He was diagnosed with FSHD in 1971 at age 14. Rob struggled with its’ affects for over 50 years. He lost his eyesight in a devastating ...
Recognized as the leading international meeting dedicated to neuromuscular diseases, the conference convenes renowned researchers, clinicians, affiliated health care providers, academicians, advocates ...
Ullrich congenital muscular dystrophy (UCMD) is a rare hereditary muscle condition that can manifest at birth or in early childhood. It belongs to a group of disorders called collagen type VI-related ...
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