Columnist Joe MacDonald describes how his son and his family have a different meaning of 'normal' than most of the population.

The bleeding disorders community reminds me of that massive oak tree.

Health Canada approved Altuviiio to treat hemophilia A in children, adolescents, and adults with the condition.

Columnist G Shellye Horowitz turns to fun hobbies while coping with chronic illness. Recent art purchases offer interesting ...

Hemophilia is a rare disorder in which a person’s blood is not able to clot properly, resulting in unusually easy and prolonged bleeding. Within the blood, proteins called clotting factors normally ...

Having more choices about the treatment of hemophilia is empowering, but it also comes with challenges, columnist Jennifer Lynne writes.

The cost of the one-time hemophilia B gene therapy Hemgenix (etranacogene dezaparvovec) will now be covered for eligible patients in Germany through the country’s public healthcare system. This comes ...

What is Recombinate for hemophilia? Recombinate (antihemophilic factor recombinant) was a recombinant (lab-made) clotting factor VIII (FVIII) concentrate approved to prevent and control bleeds, ...

Columnist Joe MacDonald explains how holding on to rituals has gotten his family through some challenging times with chronic illness.

My nurse friend remembered me as a mom whose focus was her son, not herself, and who carried a heavy weight of body and soul. Seeing her reconnected me with a significant piece of my past. Her ...