Scientists around the globe are working tirelessly on behalf of the VEDS community to advance research progress. And, they’re ...

Bella had a way of making people feel as though they were the only person in the world when she was talking to them,” said ...

The Marfan Foundation brings scientists from 23 countries to Barcelona to share research that may lead to new treatments and ...

The Marfan Foundation's Science in Spain brought global experts together to share research on earlier detection, risk and quality of life.

The Marfan Foundation symposium in Barcelona connected people living with genetic aortic and vascular conditions with leading ...

There’s a lot to be excited about at the 2026 Science in Spain gathering: world-class scientists and clinicians, new ...

Marie Law with her son, David. He is the only one of her five children who has Stickler syndrome. Marie Law, 63, says that in the first 20 years of her life, her “hypernasal voice” had prompted many ...

The Isabella Noelani Parson Welch Memorial Grant for VEDS Research supports innovative research focused specifically on Vascular Ehlers-Danlos syndrome (VEDS). This two-year grant provides up to ...

There are subtle changes at Camp Victory for Kids’ two five-night summer camp sessions each year. A new evening activity. An off-site adventure. A different craft or elective. But one thing stays the ...