Scientists around the globe are working tirelessly on behalf of the VEDS community to advance research progress. And, they’re ...

“Bella had a way of making people feel as though they were the only person in the world when she was talking to them,” said her dad, Peter Welch. She was deeply sensitive and caring, a careful ...

Knowledge is power. We want to make it as easy as possible for you to access information from our world-renowned Professional Advisory Board and other leading medical experts on Marfan and related ...

Thanks to the generosity of our community, The Marfan Foundation is convening Science in Spain, a worldwide scientific meeting with the goal of moving us toward new breakthroughs, better treatments ...

The Marfan Foundation brings scientists from 23 countries to Barcelona to share research that may lead to new treatments and ...

El 3 de octubre de 2026, La Fundación Marfan y SIMA (Asociación Síndrome de Marfan) dieron la bienvenida a una sala llena en el Meliá Barcelona Sarrià para nuestro Simposio Internacional, Claves para ...

The Marfan Foundation symposium in Barcelona connected people living with genetic aortic and vascular conditions with leading ...

The Isabella Noelani Parson Welch Memorial Grant for VEDS Research supports innovative research focused specifically on Vascular Ehlers-Danlos syndrome (VEDS). This two-year grant provides up to ...

Marie Law with her son, David. He is the only one of her five children who has Stickler syndrome. Marie Law, 63, says that in the first 20 years of her life, her “hypernasal voice” had prompted many ...

There are subtle changes at Camp Victory for Kids’ two five-night summer camp sessions each year. A new evening activity. An off-site adventure. A different craft or elective. But one thing stays the ...