Scientists around the globe are working tirelessly on behalf of the VEDS community to advance research progress. And, they’re ...
Bella had a way of making people feel as though they were the only person in the world when she was talking to them,” said ...
The Marfan Foundation's Science in Spain brought global experts together to share research on earlier detection, risk and quality of life.
The Marfan Foundation brings scientists from 23 countries to Barcelona to share research that may lead to new treatments and ...
The Marfan Foundation symposium in Barcelona connected people living with genetic aortic and vascular conditions with leading ...
There’s a lot to be excited about at the 2026 Science in Spain gathering: world-class scientists and clinicians, new ...
During Mental Health Awareness Month, we recognize that the impact of a genetic aortic or vascular condition extends beyond physical health. Medical trauma, recovery, uncertainty, and major life ...
The cast of NYC’s 25th Annual Putnam County Spelling Bee at New World Stages taking the #LarsonLove challenge in honor of Rent creator Jonathan Larson, who lost his life 30 years ago to aortic ...
Broadway pioneer, musical director of Rent, author of new book, Making Rent, and friend of Jonathan Larson and family Tim Weil knows firsthand the tragic potential impact of undiagnosed Marfan ...
Penelope shared her first-person story for Marfan Awareness Month. Hi! My name is Penelope Robles and I’m from the Philippines. This is the story of my 4-year-old daughter, Destinee Jaye, who was ...
30 years ago today, his loved ones, the theater community, and the world lost Rent creator Jonathan Larson at age 35 due to undiagnosed Marfan syndrome – a genetic aortic and vascular condition that ...
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