Amid a big move, columnist Betty Vertin continued caring for her sons with DMD, but showed what not to do about taking care ...

Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.

Four years ago, my family enjoyed a week’s vacation at Bethany Beach, Delaware. There were many great moments that made this trip with my children and grandchildren memorable. There were also a couple ...

Recognized as the leading international meeting dedicated to neuromuscular diseases, the conference convenes renowned researchers, clinicians, affiliated health care providers, academicians, advocates ...

The MDA Berks Black-N-Blue Ball is a high-energy evening where bold style meets a powerful mission. Hosted at Classic Harley-Davidson, this unforgettable event brings together supporters, community ...

A lift door failing to open ahead of a concert illustrates the issues with accessibility that columnist Betty Vertin's sons face regularly.

DMD patients who switched to the experimental therapy deramiocel in a trial showed slower declines in upper limb function ...

Because technology is a part of columnist Shalom Lim's daily life with Duchenne muscular dystrophy, he weighs in on the ...

The FDA has given the go-ahead for a trial testing an oral therapy that aims to aid muscle regeneration in adults with FSHD, ...

The realization that they were not alone set the tone for MDA Engage: Chicago, a free symposium held Sept. 26 in suburban ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit My name is Jake Levin. I am 23 years old, and I live with Duchenne muscular dystrophy. I graduated ...

Kelsey Saxon shares how she went from surviving to healing after her son received gene therapy for Duchenne muscular dystrophy.