Amid a big move, columnist Betty Vertin continued caring for her sons with DMD, but showed what not to do about taking care ...
Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.
DMD patients who switched to the experimental therapy deramiocel in a trial showed slower declines in upper limb function ...
The FDA has given the go-ahead for a trial testing an oral therapy that aims to aid muscle regeneration in adults with FSHD, ...
Four years ago, my family enjoyed a week’s vacation at Bethany Beach, Delaware. There were many great moments that made this trip with my children and grandchildren memorable. There were also a couple ...
Recognized as the leading international meeting dedicated to neuromuscular diseases, the conference convenes renowned researchers, clinicians, affiliated health care providers, academicians, advocates ...
The MDA Berks Black-N-Blue Ball is a high-energy evening where bold style meets a powerful mission. Hosted at Classic Harley-Davidson, this unforgettable event brings together supporters, community ...
Navigating Duchenne muscular dystrophy (DMD) is a journey with challenges at every stage. From recognizing early signs to managing daily life, understanding genetics and heart health is key. With the ...
A lift door failing to open ahead of a concert illustrates the issues with accessibility that columnist Betty Vertin's sons face regularly.
What is Amondys 45 for muscular dystrophy? Amondys 45 (casimersen) is an approved antisense oligonucleotide therapy for the treatment of Duchenne muscular dystrophy (DMD) in people with certain DMD ...
Extensive research is vital for improving and advancing knowledge about muscular dystrophy (MD). Clinical trials are research studies that evaluate the safety and effectiveness of medical devices, ...
Ullrich congenital muscular dystrophy (UCMD) is a rare hereditary muscle condition that can manifest at birth or in early childhood. It belongs to a group of disorders called collagen type VI-related ...
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