Cystic fibrosis taught me to prepare for the worst, but pregnancy taught me to make room for hope and trust my body alongside medical care. Through my journey to motherhood, I learned that CF doesn’t ...

Cystic fibrosis care is changing quickly — with better treatments, longer lives, and new tools like telehealth. This is pushing us to rethink what high quality, individualized care should look like.

While complications from cystic fibrosis created a rocky start to Noelle’s story, our faith has kept us strong and been a guiding light through the darkness.

For those living with cystic fibrosis, it does not pause when you clock in to work. It doesn’t wait until meetings are over or the workday officially begins. CF is present long before arrival — in ...

For years, I carried a collection of unexplained health issues that never quite added up. I didn’t cough, I didn’t wheeze, and nothing about me fit the traditional picture of cystic fibrosis. So when ...

My family and I just made a huge move from Oklahoma to Oregon for my husband’s new job — our own Oregon Trail, but with meltdowns and caffeine instead of oxen and dysentery. Survival level: expert.

I remember the exact moment we realized Trikafta wasn’t the miracle drug we hoped it would be. Our 5-year-old daughter, Olivia, had become inconsolable and withdrawn, and was saying words that no ...

Today, in honor of World Oxygen Day (October 2), leading patient, provider, and professional organizations are amplifying the voices of people on supplemental oxygen to stress the critical importance ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

I’ve been putting off writing this article for several reasons. One of them is the fact that I’ve been, quite frankly, depressed. Another reason is that I don’t know if I feel comfortable fully ...

When I tell people I’m training for a full Ironman competition, their reactions range from raised eyebrows to outright disbelief. It involves swimming 2.4 miles, biking 112 miles, then running a full ...