A Day in Our Lives: Managing Leukodystrophy
6:50
A Day in Our Lives: Managing Leukodystrophy
3.5K views3 months ago
TikTokholtynsmomma
Understanding Metachromatic Leukodystrophy and Physiotherapy
2:45
Understanding Metachromatic Leukodystrophy and Physiotherapy
2.8K views3 months ago
TikTokaliamisbah00245
BEN'S ULTRA RARE DISEASE EXPLAINED #leukodystrophy #rare #explained #caregiver #hope #inspiration
1:15
BEN'S ULTRA RARE DISEASE EXPLAINED #leukodystrophy #rare #explained #caregiver #hope #inspiration
6.3K views11 months ago
YouTubeNARBE House
Krabbe disease #science #dnasequencing #rarediseases #biology #krabbe
0:07
Krabbe disease #science #dnasequencing #rarediseases #biology #krabbe
2 views4 months ago
YouTubeComputational GenomeBiology
Professor Explains Gene Therapy
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Professor Explains Gene Therapy
6.6K viewsJan 16, 2025
YouTubeDepartment for Science, Innovation and Techn…
MRI brain findings in Demylination and leukodystrophy - Neuroradiology- MRI Brain
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MRI brain findings in Demylination and leukodystrophy - Neuroradiology- MRI Brain
535 viewsMar 8, 2024
YouTubeDr Arshad Mehmood - Child Neurologist
Leukodystrophy (Metachromatic?)
1:20
Leukodystrophy (Metachromatic?)
289 views8 months ago
YouTubeLearning Radiology from CT Scans with Prof A…
0:10
Metachromatic Leukodystrophy (MLD) is a rare, terminal disease that destroys the white matter in the brain. Three of my four children were diagnosed in 2017 with this genetic disease. Kay watches from above because diagnosis came too late for her. My two boys have gone through bone marrow transplants in hope to stall the destruction of white matter. You can see here, it’s not worked for my oldest son. He is still progressing 💔 #fmld #metachromaticleukodystrophy #onthisday
647 views4 months ago
TikToksmilelikekay
0:53
Poppy's Journey: Navigating Regression in TBCD
621.5K viewsApr 3, 2023
TikTokpoppy_and_kaylee
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Meeting for the First Time: A Rare Condition Connection
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TikToknarbehouse
0:45
Some People Question WHY We Do This #shorts #family #reaction #awareness #disability #inspiration
13.4K views4 months ago
YouTubeNARBE House
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Thriving Through Adversity: A Journey of Love and Resilience
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TikToknarbehouse
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Understanding Poppy’s Rare Genetic Condition: TBCD Mutation Explained
6.7M viewsJan 13, 2023
TikTokpoppy_and_kaylee
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September is Leukodystrophy awareness month #leukodystrophy #leukodystrophyawareness #learnwithtiktok
361.7K viewsSep 28, 2023
TikTokpoppy_and_kaylee
3:01
Understanding Metachromatic Leukodystrophy (MLD) Costs
682.9K viewsJan 27, 2025
TikTokdr.aonchatpon
1:07
#Leukodystrophy can make it hard to swallow thin liquids, but Max has to take #Keppra every day. Here's how we make it easier! #dysphagia #TBCD #CureTBCD #tbcdawareness #leukodystrophyawareness #slp #disability #toddlermedicinehack #toddlermedicine #medicalmom #disabilityparenting #respectfuldisabilityparenting
1.3M viewsMay 1, 2023
TikTokmiracleformax
2:43
Understanding Leukodystrophy: Causes, Symptoms, and Treatment Options
468.7K viewsMay 2, 2024
TikTokdrmuhammadishaq1020
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Understanding TBCD Gene Mutation and Its Impact
391.4K viewsAug 20, 2023
TikTokalifeforleo
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Preview of Poppy Designs in Memory of Our Daughter
159K viewsOct 30, 2024
TikTokpoppy_and_kaylee
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Understanding Leukodystrophy Through Last Smiles
206.7K viewsMar 1, 2024
TikTokpoppy_and_kaylee
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